I had a difficult August. I think in my mind, I thought that once I started to take the meds for Q-fever that things were going to keep getting better. When I had setbacks (July 4th and then during that super-hot spell last month), my infectious disease Dr and I thought it was more of a reaction to heat. When it happened again during moderate weather and for longer, anxiety took over.
It is hard when you have medical issues not to be negative. I wrote, deleted and wrote, posted and deleted a few posts here because I was all over emotionally, mostly in a negative spiral because there were no patterns, it was out of my control, and I did not have hope that this was getting better. We all go there. It doesn’t help anything. How did I get out?
I could not write [well]. I isolated myself again. Therapy was not super helpful because I went back to this winter where my brain was in overwhelm and I quite literally could not think. Every task took a long time to do. I had to write a lot of notes. I forgot to return calls or texts again.
I was also super aware of the thin line between a trauma dump and sharing my healing journey. The point of this blog was to share, help someone with ideas or to find a common journey, have that space to share my life’s work. I needed time to find tools to help me navigate the physical and mental set back. I needed time to organize how to share everything in a way that is helpful for me and for anyone that stumbles onto this blog.
Here are a few of things I learned:
- Setbacks happen and it *is* out of your control.
- Note in a daily journal the who, what, where, when, and if you know why of this set-back. Detail the physical reactions first. Then the “inside voice” narratives that you are telling yourself.
- I have this “Daily Reminders” list of things I can do to help when I am in certain brain spaces (Overthink–> Write, Confused/Anxious–> Walk, etc). The thing is that when I am in this fatigue state, those activities are not available to me. I am trying other things as a plan B.
- You may have daily “self-care” routines that every app and Dr variety recommends you do, but when you are in an Overwhelm brainspace, self-care or anything fluffy or extra-work regarding your “self” is not going to happen. Have a AM and a PM To-Do list of the bare minimum daily needs that have to happen. Things like “brush teeth, brush hair, change underwear, drink glass of water, eat something resembling food…” Be realistic about it.
- Have a “I am feeling a little better but am not quite there” daily list of things to do. Make it so you have to cross it off, not write it in. Be ok when it is not 100% of the list, just try to add one more thing a day.
- If you push being ok too soon, it will either take longer to be ok again or you will go back to square one. You don’t want that any more than you want to be in this state of fatigue.
I am by nature someone who wants to keep bulling ahead. I am not sure if that is why I made it as long as I did in as much pain as I was in or as much overwhelm as I was in, but it almost killed me physically and mentally so don’t do that. You also need to work with health care varieties in this journey.
I would love to hear how people manage their physical and mental setbacks.